Browsing by Author "Celia, Tania"
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Item A phenomenological study of parents of autistic children’s experiences with safety(4/26/2019) Celia, Tania; Freysteinson, Wyona M.Autism is a complex problem with a significant global burden with increasing prevalence. Autism is a complex disorder with varying presentations. Autistic children are most often cared for by parents who, at the time their child is diagnosed, are overwhelmed and have limited knowledge of autism and the potential safety issues that exist. Safety may not be an immediate consideration while they learn to cope with the diagnosis and what it means for them and their family. It is unknown if healthcare providers are communicating enough about safety issues specific to autism to give these parents appropriate anticipatory guidance during check-ups. A review of the literature reveals limited recommendations for the education of parents of autistic children about how to manage safety concerns specific to autism or what safety issues to anticipate once their child has been diagnosed with autism. During this phenomenological study, parents of autistic children were interviewed. The study explored the safety issues they have experienced with their child and where they obtained information about safety specific to autism. Ricoeur's hermeneutic phenomenology method was used to interpret the data. Two underlying structures which demonstrated the trajectory of the experience were: lost/ finding our way and battle-ready/battle weary. The phenomenological themes within battle weary included: living with fear, living with uncertainty, and living with disappointment. The participants provided recommendations for other parents and healthcare providers to help keep autistic children safe. This study illustrates the unique perspective of parents of autistic children concerning safety.Item The amputee experience of viewing self in a mirror [poster abstract](Elsevier, 2015) Freysteinson, Wyona; Denika, Douglas; Thomas, Lisa W.; Sebastian-Deutsch, Amy; Reeves, Kristin; Celia, TaniaObjective(s): To generate a description of the mirror experience following limb amputation and appropriate clinical and educational interventions.Item Concurrent medical conditions in autism spectrum disorders(Pediatric Nursing, 2016) Celia, Tania; Freysteinson, Wyona M.; Frye, Richard E.Long thought to be purely psychological in origin, current research lends credence to the idea that autism has a medical basis. Patients with autism can be among the most challenging patients that a healthcare provider may care for. Often the presenting symptoms of autism make these patients difficult to examine and may also mask underlying concurrent conditions. This article reviews some of the more common conditions found concurrently in the autistic population.Item A study of the amputee experience of viewing self in the mirror(Lippincott, 2016-02-16) Freysteinson, Wyona M.; Thomas, Lisa; Sebastian-Deutsch, Amy; Douglas, Denika; Melton, Danielle; Celia, Tania; Reeves, Kristin; Bowyer, PatriciaPurpose: To describe the trajectory of viewing self in a mirror after an amputation and participants’ perceptions of what health care professionals should know about mirrors. Design: Hermeneutic phenomenology Methods: Focus groups were conducted to collect the research data. Findings: The mirror experience had three key moments: decision, seeing, and consent. The trajectory of viewing self in a mirror had four key themes: mirror shock, mirror anguish, recognizing self, and acceptance: a new normal. Participants’ recommendations for introducing the mirror after an amputation and using a mirror to avoid skin breakdown and infection, and correct gait and balance are described. Conclusions: This study provides a unique viewpoint into the world of those who have suffered amputation of a limb. Clinical Relevance: Rehabilitation nurses and other health care professionals are encouraged through these participants to consider the effect and value of mirrors when caring for those who have had an amputation.