Meeting the challenges in conducting research in vulnerable older adults with self-neglect-notes from a field team

Date

2023

Authors

Pickens, Sabrina
Burnett, Jason
Trail Ross, Mary Ellen
Jones, Erick
Jefferson, Felicia

Journal Title

Journal ISSN

Volume Title

Publisher

Frontiers Media

Abstract

Gaining a systematic understanding of possible ways to increase the quality and lifespan of older adults experiencing self-neglect has unique challenges. These challenges include identifying self-neglect in the community and navigating levels of cognitive, physical, and/or psychological difficulties in this population that impact recruitment, consent, and accurate data collection. Conducting quality research under some of the environmental self-neglect conditions such as squalor, animal and insect infestations and no utilities can also challenge planned study protocols and study validity. This manuscript presents details of these overarching challenges and some of the workable solutions noted and implemented by research field-team members who have enrolled over 300 adults experiencing self-neglect for various studies. Usual research methodology must overcome these barriers to work to create consciousness about the self-neglect population. The classic series of cases is still a good alternative when describing self-neglect. Considerations for conducting future self-neglect research are presented.

Description

Keywords

Self-neglect, Aging adults, Field notes, Vulnerable adult, Elder abuse

Citation

This is a published version of a paper that is available at: https://doi.org/10.3389/fmed.2023.1114895. Recommended citation: Pickens, S., Burnett, J., Trail Ross, M. E., Jones, E., & Jefferson, F. (2023). Meeting the challenges in conducting research in vulnerable older adults with self-neglect-notes from a field team. Frontiers in Medicine, 10.This item has been deposited in accordance with publisher copyright and licensing terms and with the author’s permission.

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