Quality Improvement Project: Improving Family-Centered Care During Inpatient Stay for Medically Fragile Neonates




Bello, Taylor

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Background: This research will focus on conducting a needs assessment for parents/caregivers to identify barriers associated with family-centered care practices (FCC) for parents of children previously admitted to the NICU, or Inpatient stay, specifically the pediatric CVICU as the basis for a quality improvement project.

Methods: This study used a non-experimental mixed-methods approach. Parents and caregivers of medically fragile neonates previously/currently admitted to the NICU, pediatric CVICU, or Inpatient stay participated in this study. Participants completed an anonymous 29-question survey distributed via a link posted online on various social media platforms targeting specialty therapy groups and pediatric heart disease organizations, in addition to supplying demographic information as part of the study. Additionally, there will be three optional open-ended questions at the end of the survey created to better understand and identify gaps in family-centered care practices.

Results: A significant Pearson correlation was found at the .01 level (2-tailed) between all four of the FCCS-NICU sub-scales and the total score of the FCCS-NICU scale, meaning that higher scores on one subscale, translate to higher scores on the total FCCS-NICU scale. This shows that each of the 4-subscales (i.e., dignity and respect, information sharing, care participation, and cooperation with family), are areas of importance when implementing FCC in the NICU.

Conclusion: Based on data collected in the study, information sharing, increased parental involvement regarding their neonate’s plan of care, educational resources, continuity of care, and better support systems in place for parents are areas that can be further developed to enhance the quality of care given by all disciplines in the NICU.



Caregivers, Family centered care, Neonatal intensive care unit, Parents