Caregivers Supporting Caregivers

For caregivers of a child with complex medical needs, caregiver support is needed to mediate feelings of isolation and lack of social participation in order to increase quality of life. This capstone project explored meeting the social needs of caregivers by creating a caregiver support group protocol and peer-led facilitator training protocol to launch a caregiver support group with Families for HoPE, a non-profit organization providing resources for families with children with holoprosencephaly.